You’ve done it! You’ve braved the chemo, radiation, surgeries, testing, scans, hair loss and fear … and you are in remission. Yay you!
Your treatment team worked together to get you here. Oncologists, radiation, surgeons, general practitioners, physical therapists, social workers, nutritionists and more.
You’re scheduled for “monitoring” with your oncologist and that’s fine because the battle is behind you.
Or is it?
Suddenly, where once there was a “team” now your care is very fragmented. And you are just beginning to understand that this is a lifelong battle; the treatments that saved your life have serious, ever evolving long term side effects.
Chronic pain, neuropathy, physical limitations, immune system challenges, questions about daily life. You are sent to doctor after doctor for answers, but diagnoses and treatment strategies often collide in opposition. The right hand doesn’t know what the left hand is doing anymore.
Who do you listen to? Who’s right? There is no field general directing the nuanced care that you need.
We need our own specialist. We need a Survivorship Oncologist.